Genetic testing and privacy.
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Genetic testing and privacy.

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Published by Privacy Commissioner of Canada in Ottawa, Ont .
Written in English


  • Human chromosome abnormalities -- Diagnosis -- Social aspects.,
  • Medical screening -- Social aspects.,
  • Privacy, Right of -- Canada.,
  • Genetic code -- Social aspects.

Book details:

Edition Notes

English and French on inverted pages.

Other titlesLe Dépistage génétique et la vie privée.
The Physical Object
Paginationiii, 130 p. ;
Number of Pages130
ID Numbers
Open LibraryOL20918937M
ISBN 100662589661

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  Librarian's tip: "Genetic Testing" begins on p. , "Genetic Screening" begins on p. Read preview Overview Risk, Age and Pregnancy: A Case Study of Prenatal Genetic Screening and Testing By Bob Heyman; Mette Henriksen Palgrave, Consumer Reports says better privacy protections are needed for the intimate genetic data you share when you take a direct-to-consumer genetic test.   DNA testing with 23andMe, Ancestry and other companies reveals your ethnic heritage, but it also has the potential to risk your genetic privacy. SUBSCRIBE NOW As low as $3 for 3 months.   Genetic-testing companies cannot guarantee privacy. And many are actively selling user data to outside parties.

The project, funded by $2 million from the National Institutes of Health, tackles other aspects of genetic data law, but it was the discussion of privacy that dominated the group’s third and.   Libby Copeland’s “The Lost Family: How DNA Testing Is Upending Who We Are” serves as an entertaining and impressively comprehensive field guide to the rapidly evolving world of genetic. Surreptitious DNA testing - testing without the knowledge of the person being tested - is another potential threat to the privacy of people's genomic information. Some companies offering DNA testing allow consumers to obtain genetic analyses of various biological samples without requiring the consent of the individual or individuals being tested. The data you shared with a genetic testing startup like 23andMe is private — for now.. But maintaining that privacy, which rests on your data being kept anonymous and secure, is getting harder.

Direct-to-consumer genetic testing first came on the market about a decade ago, but I resisted the temptation to see what health information is hidden in my DNA — until now. The rules set out in HIPAA and in associated regulations protect the privacy of individually identifiable health information, including the genetic test result discussed in this case. Physicians and others who are covered by HIPAA are prohibited from disclosing protected health information to third parties (in this case the sister) without. Among the issues they addressed were the availability of DNA and genome testing, privacy concerns for private persons and public figures, implementation of the Genetic Information.   Workplace genomic testing raises substantial legal and policy concerns, including privacy of genetic information, says co-principal investigator Charles Lee, .